The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care
July 2009 (revised)
[url=http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_103161.pdf]http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_103161.pdf[/url]

NHS Continuing Healthcare checklist 2009:
[url=http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_103328.pdf]http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_103328.pdf[/url]

Decision Support Tool (DST) 2009 for NHS Continuing Healthcare:
[url=http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_103329.pdf]http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_103329.pdf[/url]

Fasttrack pathway for NHS Continuing Healthcare 2009:
[url=http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_103327.pdf]http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_103327.pdf[/url]

Pre-2009 versions of the above can be found via this link:
[url=http://www.dh.gov.uk/en/SocialCare/Deliveringadultsocialcare/Continuingcare/DH_073912]http://www.dh.gov.uk/en/SocialCare/Deliveringadultsocialcare/Continuingcare/DH_073912[/url]

Waterlow Score (skin integrity):
[url=http://www.judy-waterlow.co.uk/waterlow_score.htm]http://www.judy-waterlow.co.uk/waterlow_score.htm[/url]

Table showing numbers of people receiving continuing NHS healthcare, by PCT, quarters 1 & 2, 2009:
[url=http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_109086.pdf]http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_109086.pdf[/url]

The Coughlan Judgement:
[url=http://www.hmcourts-service.gov.uk/judgmentsfiles/j282/coughlan.htm]http://www.hmcourts-service.gov.uk/judgmentsfiles/j282/coughlan.htm[/url]

[url=http://www.bailii.org/cgi-bin/markup.cgi?doc=/ew/cases/EWCA/Civ/1999/1871.html&query=coughlan+appeal+judgement&method=al]http://www.bailii.org/cgi-bin/markup.cgi?doc=/ew/cases/EWCA/Civ/1999/1871.html&query=coughlan+appeal+judgement&method=al[/url]

[url=http://www.publications.parliament.uk/pa/cm200405/cmselect/cmhealth/399/39908.htm]http://www.publications.parliament.uk/pa/cm200405/cmselect/cmhealth/399/39908.htm[/url]

[url=http://news.bbc.co.uk/1/hi/programmes/panorama/4768518.stm]http://news.bbc.co.uk/1/hi/programmes/panorama/4768518.stm[/url]

The Grogan Judgment:
[url=http://www.bailii.org/cgi-bin/markup.cgi?doc=/ew/cases/EWHC/Admin/2006/44.html&query=title+%28+Grogan+%29&method=boolean]http://www.bailii.org/cgi-bin/markup.cgi?doc=/ew/cases/EWHC/Admin/2006/44.html&query=title+%28+Grogan+%29&method=boolean[/url]

NHS Care Info:
[url=http://www.gpss.force9.co.uk/nhscare/]http://www.gpss.force9.co.uk/nhscare/[/url]

ADASS (Association of Directors of Adult Social Services):
[url=http://new.lga.gov.uk/lga/aio/19069]http://new.lga.gov.uk/lga/aio/19069[/url]

Age Concern Factsheet: NHS continuing healthcare and NHS-funded nursing care:
[url=http://www.ageconcern.org.uk/AgeConcern/Documents/FS20NHS_continuing_healthcare_and_NHS_funded_nursing_care.pdf]http://www.ageconcern.org.uk/AgeConcern/Documents/FS20NHS_continuing_healthcare_and_NHS_funded_nursing_care.pdf[/url]


Other links of possible interest:

Access to Health andSocial Care Records:
[url=http://www.dh.gov.uk/en/Managingyourorganisation/Informationpolicy/PatientConfidentialityAndCaldicottGuardians/DH_4084411]http://www.dh.gov.uk/en/Managingyourorganisation/Informationpolicy/PatientConfidentialityAndCaldicottGuardians/DH_4084411[/url]

[url=http://www.nhs.uk/chq/Pages/1309.aspx?CategoryID=68&SubCategoryID=160]http://www.nhs.uk/chq/Pages/1309.aspx?CategoryID=68&SubCategoryID=160[/url]

[url=http://www.bma.org.uk/images/accesstohealthrecordsdecember2008_tcm41-183583.pdf]http://www.bma.org.uk/images/accesstohealthrecordsdecember2008_tcm41-183583.pdf[/url]

[url=http://www.dh.gov.uk/en/Managingyourorganisation/Informationpolicy/Patientconfidentialityandcaldicottguardians/FAQ/DH_065886#_38]http://www.dh.gov.uk/en/Managingyourorganisation/Informationpolicy/Patientconfidentialityandcaldicottguardians/FAQ/DH_065886#_38[/url]

[url=http://www.ehow.com/how_5113788_obtain-medical-records-deceased-relative.html]http://www.ehow.com/how_5113788_obtain-medical-records-deceased-relative.html[/url]

[url=http://www.gmc-uk.org/guidance/ethical_guidance/confidentiality.asp]http://www.gmc-uk.org/guidance/ethical_guidance/confidentiality.asp[/url]

[url=http://www.ico.gov.uk/upload/documents/library/data_protection/practical_application/subject_access_-_right_of_access_to_social_services_records.pdf]http://www.ico.gov.uk/upload/documents/library/data_protection/practical_application/subject_access_-_right_of_access_to_social_services_records.pdf[/url]

[url=http://www.dh.gov.uk/en/Publicationsandstatistics/Legislation/Actsandbills/DH_4015584]http://www.dh.gov.uk/en/Publicationsandstatistics/Legislation/Actsandbills/DH_4015584[/url]

[url=http://www.fassit.co.uk/access_records.htm]http://www.fassit.co.uk/access_records.htm[/url]

[url=http://www.scie-socialcareonline.org.uk/profile.asp?guid=f27e8d1c-e610-4d04-ba50-ef437725d7c3]http://www.scie-socialcareonline.org.uk/profile.asp?guid=f27e8d1c-e610-4d04-ba50-ef437725d7c3[/url]

and Retention of Records:

[url=http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_093027.pdf]http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_093027.pdf[/url]

Action on Elder Abuse:
[url=http://www.elderabuse.org.uk/]http://www.elderabuse.org.uk/[/url]

Age Concern/Help the Aged:
[url=http://www.ageconcern.org.uk/]http://www.ageconcern.org.uk/[/url]

Benefits:
[url=http://www.adviceguide.org.uk/index/your_money/benefits.htm]http://www.adviceguide.org.uk/index/your_money/benefits.htm[/url]

[url=http://www.adviceuk.org.uk/want-help/benefits]http://www.adviceuk.org.uk/want-help/benefits[/url]

[url=http://www.direct.gov.uk/en/moneytaxandbenefits/benefitstaxcreditsandothersupport/index.htm]http://www.direct.gov.uk/en/moneytaxandbenefits/benefitstaxcreditsandothersupport/index.htm[/url]

[url=http://www.benefitsandwork.co.uk/]http://www.benefitsandwork.co.uk/[/url]

[url=http://www.dwp.gov.uk/publications/catalogue-of-information/a-to-z-of-all-dwp-information/]http://www.dwp.gov.uk/publications/catalogue-of-information/a-to-z-of-all-dwp-information/[/url]

Care Homes for Older People – National Minimum Standards and Care Homes Regulations:
[url=http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_4135403.pdf]http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_4135403.pdf[/url]

Care Quality Commission (CQC): supposedly, the independent regulator of health and social care in England:
[url=http://www.cqc.org.uk/]http://www.cqc.org.uk/[/url]

Charging for Residential Accommodation Guide (CRAG) 2009:
[url=http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_097579.pd]http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_097579.pd[/url]

Citizens Advice:
[url=http://www.citizensadvice.org.uk/]http://www.citizensadvice.org.uk/[/url]

Counsel & Care - advice for Older People, their families and carers:
[url=http://www.counselandcare.org.uk/]http://www.counselandcare.org.uk/[/url]

Disability Alliance:
[url=http://www.disabilityalliance.org/links4.htm]http://www.disabilityalliance.org/links4.htm[/url]

Elderly Accommodation Counsel (EAC):
[url=http://www.eac.org.uk/]http://www.eac.org.uk/[/url]

FACS (Fair Access to Care Services – Guidance on Eligibility Criteria for Adult Social Care):
[url=http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_4019641.pdf]http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_4019641.pdf[/url]

General Social Care Council (GSCC) the social care workforce regulation, register of social workers and eventually all social care workers:
[url=http://www.gscc.org.uk/Home/]http://www.gscc.org.uk/Home/[/url]
Similar councils are in Wales/Scotland/N Ireland and links to those are on the GSCC website

General Medical Council (GMC):
[url=http://www.gmc-uk.org/]http://www.gmc-uk.org/[/url]

Information Centre:
[url=http://www.ic.nhs.uk/]http://www.ic.nhs.uk/[/url]

Information Commissioner’s Office (ICO):
[url=http://www.ico.gov.uk/]http://www.ico.gov.uk/[/url]

[url=http://www.ico.gov.uk/upload/documents/library/data_protection/detailed_specialist_guides/subject_access_requests_and_legal_proceedings.pdf]http://www.ico.gov.uk/upload/documents/library/data_protection/detailed_specialist_guides/subject_access_requests_and_legal_proceedings.pdf[/url]

Local Government Ombudsmand (LGO):
[url=http://www.lgo.org.uk/]http://www.lgo.org.uk/[/url]

Mental Capacity Act 2005:
[url=http://www.dh.gov.uk/en/SocialCare/Deliveringadultsocialcare/MentalCapacity/MentalCapacityAct2005/index.htm]http://www.dh.gov.uk/en/SocialCare/Deliveringadultsocialcare/MentalCapacity/MentalCapacityAct2005/index.htm[/url]
and Deprivation of Liberty Safeguards (DoLS):
[url=http://www.dh.gov.uk/en/SocialCare/Deliveringadultsocialcare/MentalCapacity/MentalCapacityActDeprivationofLibertySafeguards/index.htm]http://www.dh.gov.uk/en/SocialCare/Deliveringadultsocialcare/MentalCapacity/MentalCapacityActDeprivationofLibertySafeguards/index.htm[/url]

[url=http://www.dca.gov.uk/legal-policy/mental-capacity/mca-cp-plain1.pdf]http://www.dca.gov.uk/legal-policy/mental-capacity/mca-cp-plain1.pdf[/url]

National Information Governance Board for Health and Social Care (NIGB):
[url=http://www.nigb.nhs.uk/]http://www.nigb.nhs.uk/[/url]

National Institute for Health and Clinical Excellence (NICE):
[url=http://www.nice.org.uk/]http://www.nice.org.uk/[/url]

Nursing and Midwifery Council (NMC):
[url=http://www.nmc-uk.org/]http://www.nmc-uk.org/[/url]

Office of Public Guardian/Court of Protection:
[url=http://www.publicguardian.gov.uk/index.htm]http://www.publicguardian.gov.uk/index.htm[/url]

[url=http://www.publicguardian.gov.uk/about/court-of-protection.htm]http://www.publicguardian.gov.uk/about/court-of-protection.htm[/url]

Office of Fair Trading (OFT):
report on unfair terms in care home contracts
[url=http://www.oft.gov.uk/shared_oft/reports/unfair_contract_terms/oft635.pdf]http://www.oft.gov.uk/shared_oft/reports/unfair_contract_terms/oft635.pdf[/url]

Parliamentary & Health Service Ombudsman:
[url=http://www.ombudsman.org.uk/index.html]http://www.ombudsman.org.uk/index.html[/url]

Patients Association:
[url=http://www.patients-association.org.uk/]http://www.patients-association.org.uk/[/url]

Residents and Relatives Association:
[url=http://www.relres.org/]http://www.relres.org/[/url]

Social Care Institute for Excellence (SCIE):
[url=http://www.scie.org.uk/]http://www.scie.org.uk/[/url]


Miscellaneous links - useless, useful or just interesting to read:

Law Society – Adult Social Care Scoping Report:
[url=http://www.lawcom.gov.uk/docs/adult_social_care_scoping_report_2008.pdf]http://www.lawcom.gov.uk/docs/adult_social_care_scoping_report_2008.pdf[/url]

National Health Service History:
[url=http://www.nhshistory.net/shorthistory.htm]http://www.nhshistory.net/shorthistory.htm[/url]

[url=http://www.ohe.org/lib/liDownload/603/Sixty%20years%20of%20the%20NHS%20-%20Demographics.pdf?CFID=810711&CFTOKEN=47477450]http://www.ohe.org/lib/liDownload/603/Sixty%20years%20of%20the%20NHS%20-%20Demographics.pdf?CFID=810711&CFTOKEN=47477450[/url]

Office for National Statistics:
[url=http://www.statistics.gov.uk/default.asp]http://www.statistics.gov.uk/default.asp[/url]




http://en.wikipedia.org/wiki/Malcolm_Pointon][url=http://en.wikipedia.org/wiki/Malcolm_Pointon]http://en.wikipedia.org/wiki/Malcolm_Pointon[/url]
The NHS Continuing Healthcare (Responsibilities) Directions 2009:
[url=http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsLegislation/DH_106176]http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsLegislation/DH_106176[/url]

The NHS Continuing Healthcare (Responsibilities) Directions 2007:
[url=http://www.dh.gov.uk/en/Publicationsandstatistics/Legislation/DH_078059]http://www.dh.gov.uk/en/Publicationsandstatistics/Legislation/DH_078059[/url]
The Delayed Discharges (Continuing Care) Directions 2007:
[url=http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_078049.pdf]http://www.dh.gov.uk/dr_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_078049.pdf[/url]

Page 2 - Duties of NHS Bodies


Other Continuing Care Directions:
[url=http://www.dh.gov.uk/en/SocialCare/Deliveringadultsocialcare/Continuingcare/DH_079288]http://www.dh.gov.uk/en/SocialCare/Deliveringadultsocialcare/Continuingcare/DH_079288[/url]

The Continuing Care Review Process and NHS complaints procedure:
[url=http://www.dh.gov.uk/en/SocialCare/Deliveringadultsocialcare/Continuingcare/DH_4091245]http://www.dh.gov.uk/en/SocialCare/Deliveringadultsocialcare/Continuingcare/DH_4091245[/url]
Disclosure and Inspection of Documents:
[url=http://www.justice.gov.uk/civil/procrules_fin/contents/parts/part31.htm]http://www.justice.gov.uk/civil/procrules_fin/contents/parts/part31.htm[/url]
Video link:
The NHS - National Homes Swindle
Nicola Mackintosh is a lawyer who has been involved in many
test cases in fields including community care and incapacity law. She represented Pamela Coughlan in her battle
for long-term NHS funded continuing care.
[url=http://news.bbc.co.uk/player/nol/newsid_4770000/newsid_4777100/4777104.stm?bw=bb&mp=wm&news=1&bbcws=1][url=http://news.bbc.co.uk/player/nol/newsid_4770000/newsid_4777100/4777104.stm?bw=bb&mp=wm&news=1&bbcws=1]http://news.bbc.co.uk/player/nol/newsid_4770000/newsid_4777100/4777104.stm?bw=bb&mp=wm&news=1&bbcws=1[/url][/url]

Ian Perkin interview: A growing scandal: The court case
[url=http://news.bbc.co.uk/1/hi/programmes/panorama/5196242.stm][url=http://news.bbc.co.uk/1/hi/programmes/panorama/5196242.stm]http://news.bbc.co.uk/1/hi/programmes/panorama/5196242.stm[/url][/url]

Transcript of a 2006 Radio 4 “You & Yours” programme:
[url=http://search.bbc.co.uk/search?uri=%2F&go=toolbar&q=NHS+Continuing+Healthcare][url=http://search.bbc.co.uk/search?uri=%2F&go=toolbar&q=NHS+Continuing+Healthcare]http://search.bbc.co.uk/search?uri=%2F&go=toolbar&q=NHS+Continuing+Healthcare[/url][/url]

2006 about "The National Homes Swindle: A growing scandal"
[url=http://news.bbc.co.uk/1/hi/programmes/panorama/5188580.stm][url=http://news.bbc.co.uk/1/hi/programmes/panorama/5188580.stm]http://news.bbc.co.uk/1/hi/programmes/panorama/5188580.stm[/url][/url]

23.07.2006: Transcript of “The National Homes Swindle: A growing scandal”
[url=http://news.bbc.co.uk/1/hi/programmes/panorama/5216252.stm]http://news.bbc.co.uk/1/hi/programmes/panorama/5216252.stm[/url]
Download this video clip to your desktop, open it with Windows Media Player and then ask your MP whether promises have been broken:
[url=http://dl.dropbox.com/u/698053/NHSCC.mp4][url=http://dl.dropbox.com/u/698053/NHSCC.mp4]http://dl.dropbox.com/u/698053/NHSCC.mp4[/url][/url]

And if your MP is Stephen Ladyman, MP for South Thanet, then please let us know his reply to your questions.

A couple of other choice speeches by the same Stephen Ladyman, MP:

1. 9 August 2004: Speech by Stephen Ladyman MP, Parliamentary Under Secretary of State for Community: Better Living for Older People Conference
[url=http://www.dh.gov.uk/en/News/Speeches/Speecheslist/DH_4088006][url=http://www.dh.gov.uk/en/News/Speeches/Speecheslist/DH_4088006]http://www.dh.gov.uk/en/News/Speeches/Speecheslist/DH_4088006[/url][/url]

Quote: ‘Although I am calling my vision "a vision for social care" - I actually want it to be rooted in a much wider context - because people's lives are rooted in a much wider context.’

Quote: ‘I want to see a changed approach by social services. I want to see attitudes change from "can't do" to "can do". I want to see evidence of more "joined up" thinking with other parts of the council as well as with independent and voluntary sector organisations. I want to see better trained and more highly motivated care staff. I want to see active encouragement of direct payments. I want to see more support for family carers. I want to see more choice and control being given over to those who receive services both now and in the future.’

2. 24 November 2004: Speech by Stephen Ladyman MP, Parliamentary Under Secretary of State for Community: General Social Care Council conference speech
[url=http://www.dh.gov.uk/en/News/Speeches/Speecheslist/DH_4096190]http://www.dh.gov.uk/en/News/Speeches/Speecheslist/DH_4096190[/url]
More evidence from recent history that things have not been as they should have been, and that they are still not as they should be:
2004: [url=http://news.bbc.co.uk/1/hi/programmes/panorama/3900397.stm][url=http://news.bbc.co.uk/1/hi/programmes/panorama/3900397.stm]http://news.bbc.co.uk/1/hi/programmes/panorama/3900397.stm[/url][/url]
Quote: ‘Last February the Health Ombudsman, Ann Abraham, investigated the issue of Continuing Care and presented the government with a warning.
She said: "A pattern is emerging of NHS bodies struggling and sometimes failing to conform to the law...resulting in actual or potential injustice arising to frail elderly people and their relatives. The indications are that problems may be widespread'.’

[url=http://www.medicalnewstoday.com/articles/9793.php][url=http://www.medicalnewstoday.com/articles/9793.php]http://www.medicalnewstoday.com/articles/9793.php[/url][/url]


And this one says it all: (No, I haven’t read all 70 pages of it ... just skimmed and gleaned!!)
[url=http://www.publications.parliament.uk/pa/cm200405/cmselect/cmhealth/399/399i.pdf][url=http://www.publications.parliament.uk/pa/cm200405/cmselect/cmhealth/399/399i.pdf]http://www.publications.parliament.uk/pa/cm200405/cmselect/cmhealth/399/399i.pdf[/url][/url]

Quote: ‘Current arrangements for funding long term care are beset with complexity, and lack of clear Government guidance has led to widespread variations across the country. The artificial barriers between health and social care lie at the heart of the problems surrounding access to continuing care funding. It will be impossible to resolve these problems without first establishing a fully integrated health and social care system. We have therefore recommended, as this Committee and its predecessor Committees have done on numerous previous occasions, that the Government removes the structural division between health and social care.

And this one is from very very very recent history, dated 13 January 2010:
[url=http://www.epolitix.com/latestnews/article-detail/newsarticle/personal-care-bill-moves-to-lords/][url=http://www.epolitix.com/latestnews/article-detail/newsarticle/personal-care-bill-moves-to-lords/]http://www.epolitix.com/latestnews/article-detail/newsarticle/personal-care-bill-moves-to-lords/[/url][/url]
Quote: ‘Tom Clarke (Lab, Coatbridge, Chryston and Bellshill) expressed his concern that amendment 13 seeks to limit the discretion of local authorities in setting eligibility criteria for free care.
Data Protection Act 1998: Compliance Advice - Subject access - Right of access to Social Services records

http://www.ico.gov.uk/upload/documents/library/data_protection/practical_application/subject_access_-_right_of_access_to_social_services_records.pdf